Hydro-what? This is how many people react when I talk to them about the condition I have. Or they give me a “Um...I'm embarrassed to say that I have no idea what that is” look. The condition is not visible to most people when they look at me, and it's not frequently spoken of in the news or among your co-workers. I was born with hydrocephalus, or too much cerebrospinal fluid (CSF) trapped in my brain. Though I was born with it, my body was able somehow to compensate for it until I received a traumatic brain injury at the age of fory-five years.

​Last year I had the pleasure of participating “virtually” in the 2018 Hydrocephalus Association National Conference in Los Angeles, California. By logging in to a computer I was able to be in Los Angeles, listening and viewing speakers talking about many aspects of hydro-what-alus. What particularly interested me was all the research being done and how much financial backing the Hydrocephalus Association generously gives out to the researchers who apply for funding.

People living with hydro-huh? have a boat load of questions we'd like answered and decisions to make that we'd really rather not be making. There is research going on that addresses many of these concerns. Should I have brain surgery to place a shunt to drain the excess fluid, or should I have a newer, slightly more risky surgery called ETV-CPC that is also brain surgery and the surgeons have less experience with? (or if you dare try to say it: Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization) What are the pros and cons of each? What type of shunt will the surgeon place: a programmable shunt, a shunt with the ability to compensate for a particular side effect called siphoning, or a plain shunt without any extra attachments? How long will an ETV last before it's necessary to have another brain surgery? What are the complications of these brain surgeries? Why do some people have shunt surgery, not needing another one for twenty years, and others seem to have brain surgery every year? What can we do to decrease the incidence of infection and shunt obstruction following surgery? What causes a shunt to become obstructed? What does that even mean? How does a healthy brain normally recycle used CSF? Can we mimic this somehow? Are there any drugs that can do this, instead of putting folks through surgeries and risking infection?

All of these research topics center around relieving the pressure of hydro-eh? but little research has been done to discover the genetic causes. Until now. Dr. Kristopher Kahle has been leading a team of researchers looking for genetic mutations associated with hydro-what-ulus in all its various forms. They are doing this by recruiting willing volunteers diagnosed with hydrocephalus and their families to donate a few cheek cells. My family has the pleasure of having our DNA as part of that study, due to my being gifted with water-what's-it presumably from birth. The results are in: Dr. Kahle and his team have found four new genetic markers associated with hydrocephalus. They are named SMARCC1, TRIM71, SHH, PTCH1, and we add them to the already identified x-linked mutation L1CAM.

Dr. Kahle is asking the question, “Is hydrocephalus a condition in and of itself, or is it a symptom of a larger condition?” The answer to that question appears to be that hydrocephalus is only a part of a larger genetic condition. When we shunt individuals or perform ETV surgery, we are relieving the pressure of the excess fluid on the brain, but we are not curing the condition. As long as the genetic mutations are present, excess spinal fluid will continue to be made by the body.

I look forward to hearing more about the research being performed around hydrocephalus. Hy-dro-sef-a-lus. Hy-dro-sef-a-lus. Hy-dro-sef-a-lus... The Hydrocephalus Association has recordings of the latest webinar about Dr. Kahle's research, and other interesting Hy-dro-sef-a-lus facts! Check it out at hydroassoc.org.

"It's always best  to set up camp while there is still natural light outside. That way one can find the way to the toilet and locate some Large-Leaved Aster leaves to use as toilet paper. Next, assemble the tent, get a good hot supper cooking and have time to enjoy the stars before settling into a comfortable sleeping bag and getting a good night's sleep.

"Throughout most of my life, I'd avoided learning to play piano. I'd played violin for about fifteen years, dabbled in recorder and bowed psaltery, but avoided piano because it was too 'ordinary'. Plus, it required using one's hands and fingers in a 'mirrored' sort of way, which I found difficult. I'd avoided learning to knit for the same reason, though I knew how to crochet and cross-stitch.

"I now had a new brain. The old pressure on my ventricles was gone, the pressure I'd quietly lived with for forty-five years, unknowingly. So, my curiosity overwhelmed me: would this change me in any way? Would I become a different person? Would I suddenly have new abilities previously unknown?

"The answers to these questions were 1.) yes. I now didn't have to live with the symptoms of hydrocephalus, 2.) no. I would still have the same basic personality, and 3.) maybe. The doctors said it was unlikely, but I held out hope to discover new abilities. With this in mind, I taught myself to knit! And I took piano lessons. I experienced something I had never experienced before, a connection between my right and left hands, in my brain. I could actually feel the connection, and the more I knitted and tickled the ivory keys, the more coordinated I felt. Coincidentally, typing on the computer keyboard became a similar experience. I think these activities actually help my brain to function faster."

​ --from pp. 71-72 in The Lakes In My Head, Paddling An Unexplored Wilderness 

You may be wondering why you haven't heard from me for a few weeks. I just got out of the hospital, again, except this time I'd scheduled the procedure in advance. It wasn't an emergency like it often is.

My cardiologist at Abbott-Northwestern Heart Hospital performed an Electrophysiology Study and ablated (destroyed) some cells in my heart that were not behaving properly. These cells insisted on creating an extra loop of electrical conductivity which interfered with my heart's regular, consistent rate. It's called AV Nodal Reentrant Tachycardia. By itself, it's not serious, but living with it for forty plus years does put a strain on a person's heart. Back in the Dark Ages of Electrophysiology, I had an EP done to try to eliminate the problem, but they were unsuccessful. It was a good thing they didn't try again then, because if they had I'd have had a pacemaker all these years. Instead, I went on medication to control my heart rate.

Now, in 2019, it was a completely different experience. In fifteen years cardiologists have learned a great deal more about mapping the electrical conductivity and pathways of the heart. I am part of a small portion of the population that has this extra electrical loop. It's not easy to obliterate that loop without damaging the Atrioventricular Node, the bundle of nerve fibers that assists in keeping the heart beating at about eighty beats per minute, but my EP cardiologist--EP is his specialty--was able to do it. And he's a nice guy, to boot. He was very pleasant and informative to speak with, while also exhibiting compassion and care. He didn't arrogantly  build up my expectations of his work, nor did he cringe outwardly at the thought of what he knew might be a difficult procedure. He was just confident in his abilities. His confidence made me feel certain I was in good hands, though we didn't know exactly what the out come would be this time. We agreed he wouldn't do anything that would cause me to have a pacemaker.

My cardiologist was only one cog in the system. There were about fifteen people who were also members of the team that cared for me. Two anesthesiologists, three surgical nurses, transport aides, post-anesthesia recovery nurses, at least two nurses who cared for me during my overnight observatory stay, more aides, and we surely can't forget the staff who  cleaned and prepped the surgical suite and the room I slept in overnight. All were pleasant, efficient and cheerful in welcoming me to the various rooms and suites. Having worked at this hospital in the past, I know there is a high level of excellence expected from the staff, and they perform up to that level. The result of this is that the hospital is able to afford to choose its technology wisely. The surgical suite was well-equipped. Electrophysiological equipment is high-tech, so the suite used for EP's reminded me of  watching a show like Grey's Anatomy or The Good Doctor. Plus--get this--the surgical table had a layer of memory foam on it just for me, the patient, and my comfort. Discreet ties held my arms and legs down on the table, and the anesthesiologist put his head down close to my ear to speak to me, even offering to use saline wash to clean my eye when a tiny speck of lint from one of the warm blankets flew into it. I felt a bit pampered. I'm not deserving of this pampering. They did it because they care.

The result of all this, hopefully, will be that I will be able to race-walk a 5-K in five months or so without having to take any medication to slow my heart. That would be absolutely amazing and worth celebrating in a big way. What do you think I should do to celebrate? I think I'll just walk another 5-K, and another, and another...

Good afternoon from snowy Minnesota, USA!

Let me introduce myself: My name is Lesli. I have a husband named Ken, two cats named Mango and Butternut, and a freshwater aquarium full of small fish. My adult daughter is on her own now, but we enjoy seeing her frequently. I've lived in Minnesota all my life, but I've traveled all over the U.S. and to England and South America. I enjoy camping, being outdoors, singing in choirs at my church, learning as much as I can about music, and caring for my neighbors' children and pets. Oh, and I also have hydrocephalus.

I worked for close to twenty years in the human medical laboratory industry and in veterinary clinics as a vet assistant. I have a bachelor of science degree in biology, having taken many more credits than I needed because I couldn't narrow down my field of study. Everything fascinates me. I also love to learn. I pursued becoming a medical technician, a physical therapist, a naturalist, and a veterinary technician. I was persistent. It seemed like I was always struggling with medical conditions that were limiting me. Then I was diagnosed with hydrocephalus.

Over the course of my life I've raised rabbits, cats, a dalmatian, fiddler crabs, freshwater fish...even an anole from Florida that piggybacked into my house on a Norfolk Island Pine. I adopted a cockatiel that had escaped from his owners, flown an unknown distance and landed in my neighborhood. One of my cats died from feline leukemia; Matthew's heart stopped because of hypertrophic cardiomyopathy; Kaci, Gretchen and Princess all died of different types of cancer. The dalmatian had a spinal injury of some kind, but lived to almost thirteen. Feline Heidi and cockatiel Alec actually lived into old age; we were pleasantly amazed. Turns out, I have a medical condition, too.

I've lived along side two parents, my father and my husband's mother, as they struggled with dementia and then passed peacefully away. There have been two suicides in my extended family. I would never consider suicide as an option; I have way too much to live for. I was there when one grandfather, several great aunts, several cousins, an uncle, and both of my grandmothers passed away. To our knowledge, none of them had hydrocephalus, but now I do.

By the age of forty-five years I had already lived a full life of service to others and to God. Actively involved in the Christian church as I was growing up, through my college years, and the years following, I had a firm foundation of faith to rely on. Faith in a loving God who is always by my side. Faith in a just God who acts in our lives for our good. Then, I was diagnosed with the kind of hydrocephalus that is usually diagnosed at birth or soon after. The surgeon said I was probably born with it. Aqueductal stenosis, he called it. 

And, guess what? It can't be cured...yet. It can be treated through brain surgery, often several or many. This was my prognosis. I knew what hydrocephalus is, but how could I have it now? I'm not a newborn! I'm forty-five years old! 

Well, I'm making it through this latest journey in my life, and I am happy. It's been twelve years since that diagnosis. Twelve years that haven't been easy. I'm still here on the planet and I have a story to tell!

Read The Lakes In My Head: Paddling An Unexplored Wilderness​, published by Xlibris Publishing, written by yours truly.

Cold weather doesn't always have to be about warnings and danger! Here's a reprint of my earlier blog about winter camping in the Boundary Waters Canoe Area.

In my book I write about canoeing in the Boundary Waters Canoe Area of Minnesota, a wilderness area adjacent to the Canadian Quetico. Without question, it is some of the most beautiful wilderness I have ever been to for canoeing and rustic camping, but did you know it's a great place to ski camp in the snowy Winter months?

Right now in Minnesota there are several inches of snow on the ground. This means we are in Winter camping mode, not canoeing mode! Camping in the snow is amazing. Let me tell you a little about one of my trips to the BWCA in Winter.

As always, our group began with several meetings to plan and become acquainted with each other. I would be spending a week in wilderness with men and women I didn't know very well, and we had to build trust with each other. We would be away from civilization, so our planning was detailed and thorough. We began our trip in Ely, Minnesota, on the edge of the BWCA. The town of Ely is well equipped with businesses that cater to adventurers and campers; this industry is the mainstay of the town.

Our group cross country skiied with heavy backpacks, towing specially designed sleds from our starting point near Lake One. We were transporting everything we would need for a week to our first camp site on the ice at the shore of the lake. We skiied from lake to lake, and across the ice, following our plan. Upon arrival at each camp site along the trip we prepared our tent by burying the base of it in the snow to secure it to the ground, carving a "kitchen" area out of the snow, looking for a good place to cut a hole in the ice to obtain water, and preparing our insulated sleeping pads and winter weight sleeping bags for use later that evening. We boiled the water and made yummy hot meals for ourselves with our portable camp stoves.

After cleaning up the kitchen we split up, taking time to do personal things, like drying out any damp clothing. One important rule of cold weather camping is to remain dry on the skin but well hydrated inside! Just before climbing into our sleeping bags each of us filled up our water bottles and took a few swigs of water, placing the bottles in the sleeping bag with us to keep the water from freezing. We slept in as little clothing as possible, stuffing the unworn clothing into the bag with us to keep it warm and dry. Our first layer was long underwear made with polyester, polypropylene or wool, all of which trap heat even when wet or sweaty. Next came polyester jackets or pullovers, then a down insulated layer and lastly a water repellent wicking layer to keep snow from melting on us, but allow the sweat generated by skiing to evaporate into the cold Boundary Waters air.

Part way through the week an Ely dog musher met us at one of our camps, staying with us for a night and a day of learning about dog sledding. Each of us had the opportunity for a try at mushing if we so chose, and at skiing while being pulled by dogs. The dogs were friendly and obedient; they trusted the musher who was the leader of their pack. They slept outside buried under the snow at night and ate high protein, high calorie food to stay warm and happy.

One evening the weather was cold and it had been snowing all day, so we were tired, but kept warm as we told jokes and stories in the tent, which stayed about ten degrees warmer inside than it was outside, just from our body heat. A member of our group had a minimum/maximum registering thermometer in his pack. He was able to confirm that the temperature one cold night got down to thirty-two degrees Fahrenheit below zero, and yet we all stayed warm and dry by wearing the right clothing, eating well, drinking plenty of water and using our muscles. By the end of that week, I was ready to stay outside even longer, my body was acclimated to the cold and enjoying the beauty and peace of living on the edge in the BWCA.

The lakes in Minnesota offer the opportunity to enjoy team work, friendship, learning by experience and seeing indescribable beauty. The lakes in my head offer me the same opportunities. I learn more about how to live with my hydrocephalus and other chronic medical conditions by making new friends, sharing joys and sorrows with them, walking or rolling along with them on their hydrocephalus journeys, and seeing how beautiful each one of us is just by being who we really are with each other. As Winter campers sharing practical camping techniques or equipment with friends, those of us on this hydrocephalus journey can encourage and share practical advice. ​

Last night I had the honor of attending a memorial service for one of my most influential teachers. My high school choir and orchestra director, we called him "Mr. A." While at the service, I saw a teacher who was also my brother's track coach. I was a statistician/assistant to the coach for a short time, back in the day. Each one of us is running a race called life. We have hurdles to leap over, some people more than others. I don't remember what his coaching style was like, but I do remember my choir director's style. His teaching style was that of a beloved older brother showing you the way. He had a beautiful professional singing voice, but none of us students ever knew that. To us, he was a friend and mentor. After the service, many of us gathered to share stories of how we each had experienced his jovial, enthusiastic, warm and caring personality. We were invited to gather as a group and sing a song for his wife, a hymn from the Lutheran Hymnal. While stepping forward to sing, I saw a fellow choir member approach the stage, immediately recognizing her wonderful naturally curly hair and precious smile. It was such a joy to see this great friend and fellow Pop Group singer after...how many?...over thirty years. Yes, I used to be able to sing and dance at the same time. Not anymore, but I'm slowly working on it.

She and I began discussing our lives as people do after being separated for decades and discovered something absolutely amazing. We were both intimately acquainted with hydrocephalus. As far as we knew, we were the only two students from our class who attended the service. Amazing odds? You bet! It turns out, her first-born son acquired hydrocephalus within his first year of life. She had no one to turn to for advice and not much money for medical care. The clinic she attended for emergencies apparently had no knowledge of hydrocephalus. A relative who also happened to be a nurse finally saw her son and immediately knew he needed to be seen by an experienced pediatrician. Her relative helped her pay for his care. Thus began her journey at the side of a boy requiring multiple brain surgeries throughout his life. He is a young man now, with a college degree, looking for a job. He successfully completed school, but has been struggling with motivation. Don't we all? She had tears in her eyes as she told me her story. We hugged a lot. During the drive to my modest middle class home I was on the verge of tears, too, but happy tears, tears of joy.

Meetings like this were the reason I began volunteering with the Hydrocephalus Association years ago. The opportunity to be in the right place at the right time to encourage people who were having to constantly explain to others what hydrocephalus is. Who had to fight for assistance with their children's medical care. Who were finding out for the first time that Spina Bifida runs in their family. Who were afraid their child might not make it through high school graduation. My friend made it through all of those things by herself because she is one strong and persistent woman. I became a volunteer so that mothers, fathers and care givers might not have to travel this journey alone. I can't always give them the answers they seek, but I can refer them to professionals who may have the answers. And I can tell them not to give up when the medical community seems cold, like they are only a number. I know from my experience inside the medical community that no one is just a number. Surgeons, doctors, nurses, nurse practitioners and lab staff are all doing the best they can. We need to support them as they support us.

So, this is why I speak openly about my life experiences. I love my high school friend. It was good to see her and remember choir adventures. It was also good to know that my struggles in life may have given her some hope and encouragement. This is why I volunteer for the Hydrocephalus Association!

After eight hours in the hospital Emergency Department, "Ken and I went home and crawled into bed. It had been an exhausting and frightening six hours for Ken, and eight hours for me. The question of whether I was going to acquire another diagnosis loomed over me, but I was too tired not to sleep.

"Thursday morning arrived too soon. At 8:00 am my cell phone rang, followed by the sound of someone leaving me a voice message. The ophthalmologist's office was following up on the events of the day before. I rolled over in bed and slept another hour. Later, after following my usual morning routine, I picked up the phone and scheduled two appointments, then canceled a routine dental visit I'd scheduled weeks ago. Clean teeth could wait a few more days!

"The first appointment of the day was at the neurosurgeon's hospital clinic office to meet with Stephanie, the certified nurse practitioner who had followed my case from my first brain surgery. She was ready with the magnetic device that programs the valve on my brain shunt, changing the pressure setting at which the valve is set to open. She applied a small amount of gel to the area on my head where the valve is located. Then she gently applied the programming apparatus to that area, holding it steadily in place for, maybe, one minute. This painless procedure is completely non-invasive, and only requires removing the gel from my hair when we're finished. The comfortable setting varies from person to person, but is always within a specific range. For some patients, she sets the valve just prior to surgery and never needs to change it again. In more sensitive patients, like me, she may have to tweak the setting in order to provide maximum comfort.

"I left the clinic in a good mood, thankful that one more loose end was tied. As I drove up in front of my house, I saw a Cooper's Hawk tearing at his kill, on the ground in our yard. Having striking coloration, Cooper's are handsome and powerful, yet compact, raptors. A family of them has remained in our neighborhood for several years, but this was the first time I'd seen one munching his lunch in my yard. I watched from my car until something scared him off. I wanted to see what his kill was, so looked intently at the area as I walked past. Only feathers remained of the bird he'd eaten, probably a House Sparrow.

"I ate my lunch quickly, so I could jump into the car again to drive my reliable, old Saturn to my second appointment. This one would be less comfortable for me. The ophthalmologist wanted to complete a few more tests in his clinic, in order to finalize my diagnosis. Particularly, he wanted to check the field of vision in my affected eye. We had discussed two of the diagnostic possibilities the night before. The first was a serious one: arteritic anterior ischemic optic neuropathy, or AION. This was part of a vascular disease that could effect my whole body and cause blindness. The second possibility and the one he finally chose was non-arteritic anterior ischemic optic neuropathy or NAION. Even he could not say that ten times fast! In essence, my left optic nerve had experienced an ischemic event, or stroke: the blood flow to it had been briefly cut off for an unknown reason, likely having nothing to do with hydrocephalus, but possibly the result of my sleep apnea. The doctor said I needed to allow it time to heal, but that it may not heal completely, and it may happen again. Another diagnosis to add to my ever-growing list.

"I usually went straight home after an encounter such as this one, to research the items from my discussion with my doctor, in order to understand my condition better. This time, however, I canceled my plans for the rest of the day and took a brisk walk with my neighbor friend. A brisk walk is good for relieving stress when paddling a canoe is not available!"

From The Lakes In My Head: Paddling An Unexplored Wilderness

In my book I write about canoeing in the Boundary Waters Canoe Area of Minnesota, a wilderness area adjacent to the Canadian Quetico. Without question, it is some of the most beautiful wilderness I have ever been to for canoeing and rustic camping, but did you know it's a great place to ski camp in the snowy Winter months?

Right now in Minnesota there are several inches of snow on the ground. This means we are in Winter camping mode, not canoeing mode! Camping in the snow is amazing. Let me tell you a little about one of my trips to the BWCA in Winter.

As always, our group began with several meetings to plan and become acquainted with each other. I would be spending a week in wilderness with men and women I didn't know very well, and we had to build trust with each other. We would be away from civilization, so our planning was detailed and thorough. We began our trip in Ely, Minnesota, on the edge of the BWCA. The town of Ely is well equipped with businesses that cater to adventurers and campers; this industry is the mainstay of the town.

Our group cross country skiied with heavy backpacks, towing specially designed sleds from our starting point near Lake One. We were transporting everything we would need for a week to our first camp site on the ice at the shore of the lake. We skiied from lake to lake, and across the ice, following our plan. Upon arrival at each camp site along the trip we prepared our tent by burying the base of it in the snow to secure it to the ground, carving a "kitchen" area out of the snow, looking for a good place to cut a hole in the ice to obtain water, and preparing our insulated sleeping pads and winter weight sleeping bags for use later that evening. We boiled the water and made yummy hot meals for ourselves with our portable camp stoves.

After cleaning up the kitchen we split up, taking time to do personal things, like drying out any damp clothing. One important rule of cold weather camping is to remain dry on the skin but well hydrated inside! Just before climbing into our sleeping bags each of us filled up our water bottles and took a few swigs of water, placing the bottles in the sleeping bag with us to keep the water from freezing. We slept in as little clothing as possible, stuffing the unworn clothing into the bag with us to keep it warm and dry. Our first layer was long underwear made with polyester, polypropylene or wool, all of which trap heat even when wet or sweaty. Next came polyester jackets or pullovers, then a down insulated layer and lastly a water repellent wicking layer to keep snow from melting on us, but allow the sweat generated by skiing to evaporate into the cold Boundary Waters air.

Part way through the week an Ely dog musher met us at one of our camps, staying with us for a night and a day of learning about dog sledding. Each of us had the opportunity for a try at mushing if we so chose, and at skiing while being pulled by dogs. The dogs were friendly and obedient; they trusted the musher who was the leader of their pack. They slept outside buried under the snow at night and ate high protein, high calorie food to stay warm and happy.

One evening the weather was cold and it had been snowing all day, so we were tired, but kept warm as we told jokes and stories in the tent, which stayed about ten degrees warmer inside than it was outside, just from our body heat. A member of our group had a minimum/maximum registering thermometer in his pack. He was able to confirm that the temperature one cold night got down to thirty-two degrees Fahrenheit below zero, and yet we all stayed warm and dry by wearing the right clothing, eating well, drinking plenty of water and using our muscles. By the end of that week, I was ready to stay outside even longer, my body was acclimated to the cold and enjoying the beauty and peace of living on the edge in the BWCA.

The lakes in Minnesota offer the opportunity to enjoy team work, friendship, learning by experience and seeing indescribable beauty. The lakes in my head offer me the same opportunities. I learn more about how to live with my hydrocephalus and other chronic medical conditions by making new friends, sharing joys and sorrows with them, walking or rolling along with them on their hydrocephalus journeys, and seeing how beautiful each one of us is just by being who we really are with each other. As Winter campers sharing practical camping techniques or equipment with friends, those of us on this hydrocephalus journey can encourage and share practical advice. 

While sitting in front of my "Happy Lite" one Minnesota morning in November, my eighteen month old orange cat Mango, politely asked to be on my lap. She tentatively stepped on to my leg, feeling gently whether or not I would accept her presence on my lap. Ken and I had just been discussing whether cats enjoy the full-spectrum lamp for its light or for its warmth. He was not convinced that a cat would seek out the light for any other reason beside its warmth.

My thought was that cats, being mammals, probably enjoyed the full spectrum of sunlight for some of the same reasons we humans do, including the need for sunlight to activate vitamins and hormones that help us have a pleasant mood. I haven't read any studies on the subject of cats' need for sun, so I don't know the truth. It's only a hypothesis, but I think it's reasonable.

After Ken left the room, Mango settled on to my lap for her morning snooze. As she stretched and sought a comfortable position on her side, she pushed her back against my arm, her paws pushing against my other arm. Eventually, I needed to move my arms, but I didn't want to disturb her sleep. I carefully pulled a folded blanket over to replace the arm she was leaning her back against. She tried out the blanket, but it just wasn't the same as my hand and arm supporting her back, neck and head. After a few minutes, she got up and rotated her body so she was leaning her back against my stomach. As long as I didn't move my legs, she stayed that way and slept contentedly. Her breathing became slow and regular as she warmed my legs with her body curled in a ball.

We all need each other, though we don't always understand why. Warmth, light, comfort, support, a sound board for thoughts, or a push in the right direction are necessary for us to survive in the world. We can't do it alone. We are social animals that can only live so long without another. Some days we need to be surrounded by a friend or two or three. No need to apologize for support.

I am here for you, you are here for me. We need each other.

"Part of the problem with the word disabilities is that it immediately suggests an inability to see or hear or walk or do other things that many of us take for granted. But what of people who can't feel? Or talk about their feelings? Or manage their feelings in constructive ways? What of people who aren't able to form close and strong relationships? And people who cannot find fulfillment in their lives, or those who have lost hope, who live in disappointment and bitterness and find in life no joy, no love? These, it seems to me, are the real disabilities." --from The World According To Mr. Rogers: Important Things To Remember, page 25.

There is much discussion about the use of the term "disabled" these days. Some people like the term, some don't. Some use other phrases instead, like "differently-abled". Whatever its weaknesses are, the term is one we hear daily. One of the reasons I like this quote from Fred Rogers is that he points out that disabilities can be hidden from sight. Mine is a cognitive disability. I have two complete arms, two complete legs with feet, I don't walk with a brace or use a wheel chair. By looking at me, no one would know that I am frequently forgetful and struggle with depression. No one would know I have a device in my brain to divert fluid to my abdomen. My forgetfulness keeps me from doing things like working a regular job. When I forget that I'm forgetful I make mistakes that could endanger someone's life if I were working in the medical field as I used to. There are few jobs that don't require us to have a good memory.

Yet, just as Mr. Rogers points out, people all around me could be disabled, too, and I might not know it. Some are not in touch with their feelings. Some feel, but never show their hurt, anger, or fear to anyone, even close friends. Some become so afraid and angry that they pick up a weapon and try to rid the world of the people they are afraid of. Some live unhappily with no real friends. Some have lost hope of ever having a meaningful job and are bitter. These "disabled" folks are all around us, hidden in plain sight.

You might be able to bring tremendous joy to someone today simply by smiling when you see them. When you can, take time to ask, "How are you?" and listen carefully to their answer. The next time a passerby compliments you on your outfit, instead of thinking, Good grief, I don't even know that person... respond out loud with, "Thank you! I like it, too!" No matter what our physical or emotional disability may be, we can brighten others' days. Sometimes that single comment may be the one event in that person's day that prevents him or her from committing murder or suicide. I'm not making this up. It really does happen.

Bring joy to someone else's life today. Make a difference in his or her day. What a gift we have been given to bring joy to others!